ok, firstly after my experimenting on bags, sitting back analysing them, considering the pros and cons ( it’s the scientist in me! can’t help it!) i have decided to use a mixture of the eurotech bags for when i’m swimming and doing sporty type stuff, and using the microskin at other times! I wasn’t sure if you could do this, so was willing to drop the microskin if needs be. luckily you can use two different makes of bags! phew! So on to delivery companies! i was with a big company that used a seperate delivery firm, i never liked them! I love local! i don’t use supermarkets, i get all my fruit and veg from a farming cooperative which is big but also small at the same time. i get it delivered every week, what i ask for, sometimes special little gifts added from my wonderful farmer, I know my delivery driver really well. i wanted this sort of service with my bags! i noticed friends who lived midlands and down south used small companies with there own delivery driver, i wanted this so went looking. after the same sort of decisive sorting that I done with the bags, i found a nice local company with there own drivers, and a named member of staff who will deal with all my orders personally. i like not being a number! i pannicked when they couldn’t find my ‘swimming bags’ but she promised she’d sort it for me, 10 minutes later she rang me back to say she’d found them on the system, they’re a new product which is why she couldn’t find them earlier! I get my first delivery from them next monday! on to the subject of tears at bedtime! i’ve been strong, maybe too strong, pretending that having an ostomy is nothing. Yes i love my new life, crazy but true! ok i would have preferred not to have had UC to begin with but I did, so having UC or having the bag? no contest! i found on a few occasions i’ve just turned into a blubbering mess for no real reason. A wise friend recently ttold me it’s kind of a greiving process, that kind of helped as i thought i was going nuts!!! first time was a few weeks after my operation when a ‘friend’ commented on how fat i was looking that day! first day out in skinny jeans and t-shirt! had some tears, took a while to pull myself together. Dealt with it by clearing out all my clothes which were no longer appropriate. kept the jeans but was not keeping short t-shirts! Second time was beecause i wasn’t invited to a family get together because of my bag! normally i’d have just said there loss! but it kind of got to me and I realised i couldn’t stop crying! third time, a friend posted that she was going to a group meet for people with bowel problems, i got upset cause there was nothing like that up here up north! I felt so alone! so pulled myself together and set up notheast stoma girls! anyway burst intotears the other night, i’d been feeling so good for ages, with the article, the fashion video then just randomly read a conversation on facebook, some crohnie friends all decending on newcastle for the day to meet up they sounded so happy to be seeing each other, i longed for that, and for some stupid reason i just began to cry again! i guess it’s wanting to be around people who understand so you don’t have to be super strong all the time. it’s all silly cause i’ve got loads of wonderful friends and am gradually getting more local ostomates through the group. I think it’s good to let the tears out and sometimes you need silly little things to turn the tap on! Back to my usual happy self quite quickly, and ralised I’d not done anything about the ‘family’ situation, sso made a stateement on facebook about coming out of the toilet! and then deleted the lot of them! I’m always hard on myself, crying over nothing is weak, especially when there’s people out there whose lives are a lot worse, but keeping it in is probably not good. So let it out, pick yourself up and then get on with livong and loving life!
This gallery contains 5 photos.
I have suffered and experimented on your behalf to bring this second installment of my blog on bags! Hope it helps you. As mentioned in part 1 these are my personal experiences, you might have different experiences. Braun softima 1 piece The flange was good on this bag. lasted 2 days before beginning to come […]
you were probably expecting part two of the bags – well that is coming soon! I’m still experimenting!
This week has been a whirlwind! My local paper rang me wanting to do a piece on living with ulcerative colitis, and northeast stoma girls. potographer came and spent ages taking photographs! I hate having my photo taken! yesterday the article was in the paper! My 5 minutes of fame!
Also this weekend I WENT OUT TO A PARTY in a lovely dress bought by my mum! It was nice seeing friends that I’d not seen in a long time – very emotional! i had a great day out at the airshow, not having to worry about queues for portaloos! and just to continue proving squirt doesn’t hold me back, i went on a red arrows flight simulator and got thrown around. entered a competition to wing walk. I’d love to do that! i’ll not win but if you don’t enter you’ll have no chance.
I completed the fashion video! a huge thank you to all my wonderful osto ‘mates’ who allowed me to use there photos, you made it look fab! it’s on you tube at http://youtu.be/hFPZKIeHgVo
I went to an open day where lots of companies were displaying there products. i sent off for lots of samples to try and find my ‘perfect’ bag! these are my personal experience of trying them. Everyone is different so you may like a bag that i don’t. A bag that react on my skin […]
Ok, if you have school age kids, you will get my point!!! it is the first week of the summer holidays and i’m already exhausted! All I can say is thank you squirt!!!! last summer was awful! BEING SO ILL AND HAVING TWO KIDS PESTERING CONSTANTLY!!!!! Hope your first week of the ‘summer’ has gone well!
Last week I went to an open day for ostomists! It was the first one I’ve been too, I didn’t know what to expect! I was wanting to change delivery company as I really don’t like my current company. Came away from the day with a splitting headache due to all the ‘sales’ teams pestering, and very confused and still not changed to a different company! On a postive side Iwon a box of chocolates and requested loads of samples which have been steadily arriving in the post. my next few posts will have pictures and my personal comments on these bags. Everyone has different likes and dislikes when it comes to bags. feel free to leave your opinions on them!
Whilst i was walking around I spoke to one ‘sales rep’ who asked me what I enjoy doing, when I told her I normally do a lot of sports including watersports she jumped into sales mode and recomended one of her bags, obviously I’ll go in more depth later but I was scepticle of her claims, that was until I used it to go swimming with the kids!
So apart form boring sales reps, the rest of the week has been full of swimming, walking, and trying to keep the kids entertained. I’ve also been working on the fashion video. i still need pictures from willing people!!! So again I’m asking PLEASE!!!!
Ostomy lifestyle are sending me on there training course nuts and bolts of running and organising a group. THE COURSE IS IN SEPTEMBER. My stoma nurse liked the idea of the group, I’m hoping the numbers will continue to grow steadily so that eventually we can get out of cyberspace and hold some fun days (and possibly some nights) out. so far we have the VIP fashion day with bon marche, but i also like the idea of a day out in scarborough, to meet up with our yorkshire members, and so I can reminisce! I live there for a few years and married my husband there! THAT WAS SO LONG AGO!!!!
Lots of love
It’s been a hot day! I’m still learning! We have to drink lots to stop becoming dehydrated, but we also have to keep output thick. Well, I drank a lot but as for the second, hmm! I guess it’s an excuse to eat loads of marsh mallows!! On a positive note i’ve managed to get the group a vip fashion event with vouchers from bon marche. OK, not my first choice! my mum shops there! I’m trying to fight getting old, I’m still young! ( I keep telling myself that) They do have an ok range of clothes and they were very supportive on what styles etc are best. all i have to do now – get some more members, and find a venue to have the fashion event. hopefully the event will help with my fashion blog! Hopefully, the stoma nurses will help get some members and it’s the ostomist day at st james park next week. Better get started on making some flyers to publicise the group.
where to start? well I’ll start at the beginning! After years of suffering from a very horrrible disease, and having to try lots of drugs and take loads of steroids, feeling awful, getting fat steroid face, feeling embarrased and nervous about going out, I was told the only option was surgery! remove my colon, and poop from my stomach! I RESEARCHED IT! Made loads of friends online, and was told it was good to get your life back. although evertyone was positive about how there stomas changed there lives I still felt nervous. It was great having people online, some are amazing! amy and kate form let’s talk about crohns page and jessica’s uncover ostomy page – both on facebook. also IA forum was a great support. The only thing lacking was actual face to face contact! I met an old man called charlie who was very nice nad helped go through a lot of stuff but he was an old man! fashion, sex, life outdoors, those sort of questions he could not answer, I didn’t even bring them up! I’m now 7 weeks post op! And life is great! At the weekend i was camping, canoeing and hiking! on the sex, well thats better than before!! ( i was so ill before and always in pain so sex drive was 0!!!) do I want the j-pouch surgery? well i’m not even going to go there!! At the moment I’m not even thinking about it cause I’d end up making a hasty decision – at the moment the feeling is NO!!! I’ll give myself a year then look into the possibilty. You may think I’m crazy but i love squirt (my stoma) yes at times I WISH he wasn’t there, but he gave me my life back! As for fashion, i have my moments and get paranoid – squirt sticks out and is very pointy!! I’ve found some great clothes that make me look good and disquise squirt! I watched nadia’s videos on UCVLOG on youtube and got some great tips, it’s a bit ‘american’ the bags she uses are HUGE! maybe to prove any bag will work? i thought I’d start doing an english fashion video (i’m after pics if you have any???) I also got thinking about how I never met anyone apart from charlie before my surgery, and how helpful it would have been, also wouldn’t it be good to meet other stoma girls in my area nd hold socials! The IA have a meeting twice a year which is quite formal, I wanted days out, nights out, shopping trips, bbq’s, funthings and to make new friends, in person. SO i decided to start north east stoma girls! I set up a page on facebook, it’s starting slowly! have approached IA and ostomy lifestyle for help and support, and am going to mention it to my stoma nurse when I next see her. i’m hoping it’ll take off!!! although I’ll be blogging about me on this page i’ll also be logging news and events etc from the group once it gets off its feet! So – if you are a girl/woman, live in the north east of england and have had are going to have or are just considering surgery then come and join us! If you don’t fit any of these you can still follow my blog!